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Health-LiveIamA 20 year old recently diagnosed with 5th stage renal failure AMA!

Jan 11th 2018 by Hbanannana • 14 Questions • 32 Points

Hello Redditors, This is my second AMA. My schedule is extremely busy leading into games but I will try my best to respond to all of your questions up until then. I will be responding every evening. My name is Shannon-Ogbani Abeda and I am an alpine skier representing Eritrea in the upcoming winter Olympic games in Pyeongchang. I’m a 21 year old Computer Science major student and this will be my first participation in the Winter Olympic Games. If you’d like to follow me on my journey to the games, you can follow me on Instagram.

Instagram: erialpine96

I understand that some of you may have certain views that do not necessarily reflect with others or myself and I respect that. However, I’d ask that you be civil and respectful with one another. In regards to some of political questions that have been asked, the Olympic Games bring together athletes from a number of nations around the world to compete in sports at a high level regardless of their ethnicity, religion, sex, or for political reasons. Unity is a key foundation of the games. I do not have any political affiliations and I’m certainly not skiing to achieve any political motives. I am going to Pyeongchang to represent Eritrea, its people, and the diaspora. I’m sorry, but I didn’t come here to answer those questions.

Again, I’d like to thank all of you for your questions and positive feedback! I didn’t expect the amount of traction I would be receiving on some of these subreddits. Thank you for your support redditors, it means a lot!!

On CBC News

Proof

Edit 1: I didn’t except this many questions, please patient as I will try my best to respond to them; I’m not ignoring them, I just have to train, eat, do school, and you know sleep.

Edit 2: I'm back! Everyone, I just have to say THANK YOU! I never expected that I'd get such a big response! It's really heartwarming to hear the messages of support. I also really appreciate those of you respectfully voicing difficult or challenging questions. The only way we learn and grow is by challenging ourselves and each other. I'll do my best to answer all questions posed respectfully.

Edit 3: Thanks again everyone, I'm going to take another break from answering your questions. I'll be back later to keep going!

Q:

Is this all related to the head injury?

A:

I live in Central Kentucky but make my way out to Eastern Kentucky/Appalachian areas quite frequently. The network infrastructure leaves lot to be desired.

What can I do at the local level to help support wider access to broadband internet to the indigent or very rural areas?

And thank you for what you do. You're fighting the good fight, and I appreciate all that you do.


Q:

Will you have to walk all by yourself in the Opening Ceremonies parade? Does that mean you get to carry the flag, too? Sounds like it would be cool, but also kind of lonely. Good luck!!

A:

No not at all actually, it was just a lucky accident. It was found because of the head injury.


Q:

You're right. We have a real problem with broadband access in rural America. There are 34 million Americans without access to broadband at home, 23 million of them live in rural communities. We need a plan to ensure that high-speed service reaches them where they live. I think for starters we need to know today where service is and is not. But right now the national broadband map is 3 years out of date. Data that is three years old is like a lifetime in the internet age. We need to fix this. But I don't think that Washington should wait--we can begin by asking the public directly and using the wisdom of crowds. To this end, I set up an e-mail address at the FCC to take in comments about where service is lacking and what can be done to improve it. So please write in to [email protected] and let me know your stories. You can be a part of fixing this infrastructure problem.

A:

I won’t have to be alone during the Opening Ceremonies. My support team, my parents, and other members of our delegation will be walking along with me.


Q:

were you feeling off before the snowboard accident or totally asymptomatic?

A:

Are there any plans to address the fake comments?


Q:

Congrats. What do you hope to do after getting a computer science degree?

A:

No symptoms besides slight cramping in my legs and hands do to a potassium deficiency.


Q:

When I last checked, the FCC received roughly 24 million comments from the public on our net neutrality proceeding. In many ways, that's good. The American people are making known what they think about net neutrality and the future of the internet and they are letting Washington know in droves. But at the same time we saw a lot of funny stuff in our proceeding. There were about 2 million comments with stolen identities, half a million comments from Russian e-mails, and a lot of bogus comments from bots. That's a problem. I said so at the time and I called for a delay in our vote until we got to the bottom of this mess. I wasn't alone. Many members of Congress and state Attorneys General called for the agency to delay its vote and clear this up. Unfortunately, the agency--over my objections--went ahead with the vote anyway. But we still need to get to the bottom of what happened here, because fake comments are not unique to the FCC. We're seeing them filed in other proceedings here in Washington at other agencies, including the Department of Labor and the CFPB.

A:

At the moment, I'm not 100% sure if I will continue with my CS degree and I might switch my major. If I do continue with the CS program, I want to work on some cybersecurity and be a private contractor. I've talked to some people in that field, and they advised me not to pursue it considering the development of AI's and how they might phase out these jobs. Realistically though after I graduate, I will probably be working on as a system analyst or some web development job.


Q:

Did they say your odds of receiving a kidney in time??

A:

What do you think is the largest long term consquence of repealing Net Neutrality? What seems to be the most effective way to fight this repeal? Do you believe that this repeal can be challenged in court and won?


Q:

Is there much of a skiing community in Eritrea? Or in Africa as a whole?

A:

I have a huge support system so I’m just waiting for results of if I’m healthy candidate for transplant surgery.


Q:

Today, the United States internet economy is the envy of the world. I believe that's because it rests on a foundation of openness. Net neutrality is a big part of that--and I worry that the economic engine that it has supported will be harmed by this decision.

As for fighting this repeal, the most important thing to do is realize the fight is not over. There will be litigation in the courts. There will be legislative efforts in Congress. There are even legislative efforts in state houses, like Nebraska, Washington, New York, and California.

A:

There isn’t much of a ski community in Eritrea, but I hope through my participation at the Olympics I can inspire Eritreans in Europe and North America to take up skiing.

In Africa there are a few countries with athletes that compete in Cross-Country, Ski Cross and Alpine. I’m familiar with some of them and actually have trained/competed with a few of them.


Q:

Did the doctors figure out why you have this condition? You seem very young for something like this to happen.

A:

For those who have routinely called/emailed/faxed congressional representatives and filed comments directly with the FCC regarding support for NN, what would you recommend as a solid next step in the ongoing fight for NN? Surely there is more we can be doing.


Q:

I think in another AMA it was said he's been there and visited.

A:

They told me that my kidneys where damaged when I was younger, and now they are showing scaring. So they don’t know what exactly caused it the doctors just know the kidneys have been damaged for months to years.


Q:

The fight is not over. We will see litigation in the courts. We will see action in Congress. Right now, momentum is building for legislation based on the Congressional Review Act. It would, in effect, undo the FCC's misguided net neutrality decision last month. So speak up and reach out to those who represent you. This issue matters and the effort is ongoing.

A:

No, as mentioned elsewhere in this thread I was born and raised in Fort McMurray, Alberta and grew up in Calgary, Alberta. I’m incredibly proud to represent my parents home country, the people of Eritrea home and abroad.


Q:

Although scarring can be scaring, scaring is not scarring.

A:

Hey, thanks so much for all you're doing.

What does the rise of Sinclair (and the completely, totally impartial, fair, unbiased, nonpartisan must-runs like TERRORISM ALERT DESK) mean for the future of American journalism? What should we doing about it?


Q:

Expected this question.wasnt disappointed

A:

Whooops thank you for the edit. Scarring!


Q:

There is a transaction before the FCC right now that involves the combination of Sinclair and Tribune. It would result in a massive broadcasting company that would be able to reach 72% of the households in this country. No other television company today has that kind of power to influence what we see, hear, and learn. The unprecedented size of this proposed merger should have us all concerned.

A:

Ummmm, I'm going to go with a solid 9, I've actually met some of the members of the Jamaican Bobsled team and the actors don't quite do them justice. The actual bobsledders are insanely jacked!


Q:

One thing i learned early on, is get it out of your mind. I went through the , why me stage very early on as I had no symptoms and was already in end stage with a creatinine of 19. It’s rough some times but just message me any time and I’ll get back to you

A:

What does your average work day look like (aside from presumably at least one failed attempt to talk some sense into Mr. Pai)? Any funny stories you can share with us that don't violate any privacy clauses or similar?


Q:

How did you get started in skiing?

Do you train in your home country and if so how? (Example: are there "fake snow mountain" courses for practice?)

Bonus fun question: How many & what languages can you speak?

A:

I’m just shocked at how lucky I was that it happened when it did and not when I was driving.


Q:

I'm an early riser. I'm a big coffee drinker. (I consume more that I should, but hey, it gets me going.) I drop my kids off at school and then head into the office. A quick review of the morning news, my e-mail, and my twitter feed, and then it's off to meetings and sometimes speeches. But that's the ideal day. And honestly, not every day is ideal. There's always something unexpected--from an inquiry that needs response in the office to a problem at home like not having heat (true story, right now).

A:

Unfortunately, I do not train in my home country. It’s only snowed once in Eritrea and the climate can’t really sustain a ski hill. It would be nice in the future if they build a dry slope.

I speak English and French. I also can understand and speak Tigrinya, but its EXTREMELY rusty.


Q:

The man above works in mysterious ways.

Get on the transplant list as soon as you can (you will not lose your spot regardless as your spot on the list starts from the date when you started dialysis) also a little known secret is you can get on as many transplant lists as you want, you don’t only have to be on one

A:

What can an average citizen to do to fight against a captured agency?


Q:

Where do you practice? And how did you get into skiing?

A:

Thank you for that secret I’m definitely going to follow it.


Q:

Make a ruckus. Make your voice heard. I am listening--and I know there are others in Washington who are listening, too. There's a pile of letters from across the country that I have on my desk in my office. They are from people from all walks of life asking the FCC to keep in place its net neutrality policies. I could put them away, but I choose to keep them on the desk right now. It's a reminder that what we decide here has far-reaching consequences across the country.

A:

My home resort is currently Panorama based in Invermere, BC. During the off season, I train in Calgary at the Winsport facilities and also at Peak Power at SAIT. Occasionally, I will go down to the southern hemisphere in NZ for a month and in the fall before the beginning of our season here, I will travel to Austria to train on a glacier.

I first got into skiing when I was 3 years old through my sister. Her girl guide group went to the local hill in Fort McMurray (We were living there at the time) and she really enjoyed it! Through her friends that were with the local Fort McMurray club, she managed to convince my parents to sign my brother and I up for some lessons and later into a racing program with the club. I actually hated skiing and wanted to play hockey like all my classmates, but I was forced into the program by my folks. I only started enjoying it more when my dad’s job relocated our family to Calgary and I was exposed to the Rocky Mountains.


Q:

Was the kidney the cause of the ?was the seizure from the brain injury or kidney? I had my BP Spike while I was on dialysis that cause me to have one, but being from BP I also other bad symptoms that made it in possible to drive.

A:

Thank you for voting for Net Neutrality. It's nice that someone cares about the voices of the people.

Do you feel that the FCC is now divided based on this decision? Were more people in the background for/against NN?


Q:

What's your best Snatch and clean and Jerk?

Also shout out to peak power. Great gym.

A:

The seizures are from the kidneys so the doctors have revoked my license for 3 months. Can you drive at all or just is it not an option.


Q:

There are a lot of efforts to try and capture public opinion on net neutrality. I think one of the best came right before the vote. It was conducted by the University of Maryland. It found that 83% of the public favored keeping net neutrality rules in place, including 75% of Republicans, 89% of Democrats, and 86% of Independents. In short, support for net neutrality rules is broad based.

A:

Mike Souster’s and his team are some of the best condition coaches I ever worked with! Mike was able to get my fitness and strength level to where it is today and also helped do my rehab program to get back on snow. Quite frankly, I wouldn’t want to work with anyone else.

Clean and Squat Jerk: 65kg

Snatch: 35 or 40kg???

I just started getting into back into weightlifting almost two years ago (After Knee injury) and I’m still working on my numbers. Hopefully, this summer once I’m retired I can push some higher numbers.


Q:

This may sound kind of odd but is it painful?

A:

What do you think the government's role should be in assuring broadband connectivity for every citizen? Do you believe we should consider high speed access to the Internet a human right? Why or why not?


Q:

Tabs or spaces?

A:

No not painful just uncomfortable when the doctors inject water into it. Also it’s uncomfortable to lay on my side just because the tube is near my heart.


Q:

Whether or not you call it a human right, there's one thing I know for certain: If you don't have access to the Internet right now, you don't have a fair shot at 21st century success.

A:

Have to go with Tabs considering that I code.


Q:

Yeah makes total sense. Thanks for answering.

A:

Do you think a republican congress can put together and pass a Net Neutrality bill that would make net neutrality proponents happy?


Q:

First of all, congratulations! I wish you the best of luck!

When did you first become interested in doing this and did you ever think the Olympics was in your future?

A:

Thank you for asking a question, just showing interest means a lot.


Q:

Before we get to substantive legislation, we're going to see Congress try to address this issue through the Congressional Review Act (CRA). The CRA provides Congress with the ability to undo regulatory action it disagrees with. It's a long and hard road ahead, but there is undeniably momentum for the CRA. Right now, I believe there are more than 40 members of the Senate who have co-sponsored CRA legislation and about 80 members of the House who are doing the same.

A:

When I first moved to Calgary and my ability started to develop, I began to consider that this may be something that I’d like to pursue in the future. When I was 9 years old, I had really good coach that was able to see my potential and really push me out of my comfort zone. He spent a lot time working with me and convincing me that I could do better. if it wasn’t for him, I probably wouldn’t have continued on this far.

I had somewhat of an idea that I would be going to the Olympics as a child, but never really considered it fully until I attended the Youth Olympic Games in 2012. I actually wasn’t even sure if I would be going to these games after my knee injury a couple years ago. I remember when I was struggling during my rehab and was about to quit, my mom reminded me of the pictures I drew of myself standing on top of a podium at the Olympics and after I attended a small Junior Olympic event I told everyone that I would be going to Olympics some day. And here I am today.


Q:

Do you think without NN we will see the main ISPs continue to be top dog or will new rivals come along and act as if we still have NN?

A:

I saw that you mentioned the 2012 Youth Olympic Games. How was your experience competing in Vancouver?

EDIT: Accidentally said Nanjing--that was 2014 Summer.


Q:

We would all benefit from more competition. Today, according to FCC data about half of the households across the country have only one broadband provider. And hey, I'm one of them! We need more choices, not less.

A:

I think you meant Innsbruck. Honestly, it was an amazing experience and being able to experience the Olympic culture was nothing short of amazing. I wasn’t mature and very inexperienced in how international events work. I came into the games with a bad mindset and I didn’t perform to the way I wanted to. I learned a lot of good lessons and I’m glad that I went.


Q:

What's your favorite Guster album? Seeing your bro tomorrow night! Similarly, are you as good of a singer as he is? Also, thank you for fighting for Net Neutrality, we appreciate your efforts.

A:

Man how are you training for the Olympics and making it to class on time?

I struggle going to my 8 am


Q:

I'm a fan of Lost and Gone Forever. Though I also like Easy Wonderful (and especially the Do You Love Me video: https://www.youtube.com/watch?v=7k-VAlIPzKg). I suspect my parents are the only ones who can legitimately claim they have both a rocker and regulator for children.

A:

It's a difficult task, but manageable with the right time management. I take a lower course load during the winter and heavier during the spring/summer semester. It helps, but yes I still struggle to sleep and get up sometimes just like you.


Q:

Did Ajit ask you to be in his ridiculous meme infused video? I'm legit curious if he thought he could get everyone onboard with that hilarious mess

A:

Any opinion on the nude swim at southland?


A:

Just googled it!! Had no idea that was happening, but I’d be okay with it 😂😂😂


Q:

How long is it before isps start abusing their newfound powers?

A:

Before I get to the question I just wanted to say keep doing what you are doing and I hope you dominate in the Olympics! Much love from Ethiopia!

Here's the question: Do you have any good luck routines or rituals you do before a competition?


Q:

This is hard to say. But I know that companies have the technical ability to block and throttle content. They have the business incentive to do so, too. And now the FCC has given them the legal green light to go ahead. So I'll be watching carefully. I'll bet you will be, too.

A:

Nothing that come to mind unfortunately! I have in the past, but every race day is different. For pre-race, I usually do my warmup (Leg swings, core exercises, etc.) and plug in some music.


Q:

Mrs. Rosenworcel, before the repeal of Net Neutrality, I regularly called my representatives in the House and Senate. I have recently stopped because I felt it was a lost cause. Is it? What is the biggest thing I can do to ensure Net Neutrality comes back, and what can we do to ensure this isn't something we have to fight for years to come?

A:

Not a lost cause. At all! Keep the effort ongoing. I know most elected representatives keep track of the calls they get and make note of the issues that result in the biggest ruckus. Plus, I expect that in light of the Congressional Review Act effort, there is still a lot of interest in this issue.


Q:

Do you like any sports?

A:

Both of my kids are basketball enthusiasts. I love watching them on the court.


Q:

What do you think about the horrifically racist things people have said about Ajit Pai, as well as the numerous death threats and threats made to his family? Merits of Net Neutrality notwithstanding, do you think his treatment should be given more attention?

A:

It's unacceptable. Under any circumstances.